CMT 4 Me
CMT 4 Me is an emotional, heartfelt, and humorous podcast for the 3+ million people who have CMT (Charcot-Marie-Tooth disease), their friends, family, and the general public. CMT 4 Me provides a platform for people with CMT to have a voice, describe challenges, find ways to overcome those challenges, and share successes. Another goal is to spread CMT awareness and unite as a community. We will also cover research updates, fundraising, unique stories, interviews with the CMTA community, including board members, branch leaders, and CMTA team members. Have a story you’d like to share? Write to info@cmtausa.org. You may be our next guest on the new CMT 4 ME podcast! For more information on the CMTA, please visit our website: cmtausa.org
Episodes
35 episodes
Encore Presentation: Exciting Genetic Discoveries Lead to Life-Changing CMT Therapies with Dr. Stephan Züchner
In this special replay, we revisit the riveting conversation with Dr. Stephan Züchner, a beacon of hope in the realm of genetic research for Charcot-Marie-Tooth (CMT) disease. As the chair of the Department of Human Genetics at the University o...
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Season 1
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Episode 34
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47:10
CMT Insights: Unlocking Better Mobility With Tom DuPont
Charcot-Marie-Tooth (CMT) disease comes with its set of daily mobility challenges, intensified by the search for comfortable and supportive footwear amidst nerve damage, foot weakness, and deformities. In this episode of the official podcast of...
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Season 1
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Episode 33
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42:04
Foot Pain Insights With Dr. Greg Stilwell
Finding the right shoes when you have CMT can be a major challenge. The CMTA presents CMT 4 Me, its official community podcast. Join hosts Chris and Liz O. as they share a conversation with podiatrist Dr. Greg Stilwell and his intern Brandin...
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Season 1
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Episode 32
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40:11
CMTA Progress Through Unity With Gilles Bouchard, Laurel Richardson, and Jeana Sweeney
The CMTA presents CMT 4 Me, its official community podcast. Join hosts Chris and Liz O. as they pull up a chair with three passionate CMTA advocates: Gilles Bouchard, Jeana Sweeney, and Laurel Richardson. In an honest, free-flowing panel conver...
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Season 1
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Episode 31
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48:38
Hazel's Wisdom: Living Boldly with CMT
Join us for a heartwarming chat with 10-year-old Hazel and the Coldiron family on CMT 4 Me! 💫 Discover how they face CMT with unwavering positivity and determination. Hazel's advice for an awesome life? "Don't let CMT limit you, be proud of ...
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Season 1
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Episode 30
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42:01
Rick Biagiola - CMT Didn't Silence His Beat
In this poignant episode, we're honored to share the deeply personal story of Rick Biagiola, an accomplished drummer who rose to fame with the 1960s rock band The Outsiders. Known for their hit "Time Won't Let Me," the band brought Rick reco...
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Season 1
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Episode 29
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40:49
Best of CMT 4 ME
In honor of CMT Awareness Month, this episode is dedicated to helping listeners navigate the vast seas of Charcot-Marie-Tooth disease. As we sail through September, dubbed #CMTAM23, we're amplifying voices that echo the experiences, challenges,...
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Season 1
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Episode 28
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50:35
The Warrior Within: Overcoming Challenges With CMT
Prepare to Embark on an Inspirational Journey!Meet Kenneth Hill Jr., a man whose life is a testament to determination, growth, and the transformative power of martial arts. From various martial arts to self-discovery, from despair...
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Season 1
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Episode 27
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57:49
Living Life Undeterred: Camilla's Story of Rare CMT Dominant Intermediate E (CMT-DIE)
In this moving episode of the CMT 4 Me podcast, your hosts Liz O. and Chris, a dynamic brother-sister duo, welcome a special guest, Camilla Stivenson, who shares her unique journey with CMT Dominant Intermediate E (CMT-DIE) which is one of the ...
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Season 1
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Episode 26
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45:31
Understanding Anxiety and Embracing Transformation with Arda Ozdemir
In this enlightening episode of "CMT 4 Me," hosts Chris and Elizabeth welcome Arda Ozdemir, a spiritual mentor, executive life coach, and author. Arda shares his transformative journey from a finance executive to a life coach, and how understan...
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Season 1
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Episode 25
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52:25
Victoria Berezovich: From Reality TV Celebrity to CMTA Star
On this episode of the CMT 4 Me, Chris and Liz O introduce Edmonton CMTA Branch leader Victoria Berezovich. Victoria is known as CMT Barbie because she is a model with Kello Inclusive. She’s also one of the stars of the docu-series Push which t...
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Season 1
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Episode 24
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45:05
Thriving Despite The Pain: Jeff Seitzer's Inspiring Story
In this episode, we hear from Jeff Seitzer, a stay-at-home dad, and author of "The Fun Master," who was diagnosed with CMT at a young age. Despite facing incredible challenges, Jeff has shown remarkable resilience and positivity. He shares his ...
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Season 1
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Episode 23
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50:54
Pedaling Beyond CMT: Featuring Dan and John Morgan
In this episode of CMT 4 Me, Chris and Liz O. meet with Dan and John Morgan, two brothers with CMT to discuss their experiences living with the disease. As brothers, Dan and John have a unique bond and understanding of each other's strugg...
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Season 1
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Episode 22
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59:52
Assistive Technology with Ashley McLeroy
In this episode of the CMT 4 Me podcast, we are joined by Ashley, a rehabilitation engineer with CMT. Ashley shares with us what a typical day looks like for her and what her focus is, which is to use her engineering background to improve peopl...
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Season 1
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Episode 21
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53:22
Embracing My CMT: Strategies For Building A Fulfilling Life
Happy New Year! Thank you for tuning into the first CMT 4 Me episode of 2023! We are excited to kick off the year by sharing the story of Maddie, a young woman in grad school at the University of Virginia who was diagnosed with Charcot-Marie-To...
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Season 1
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Episode 20
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44:49
Psychotherapist David Tannenbaum: Secrets to Happiness Despite Chronic Illness or Pain
Do you try to ignore your CMT? Do you keep those feelings bottled up inside because you don’t have anyone with whom you can relate? Do you think no one will understand? Maybe you feel like it is nobody’s business but your own...Psychothe...
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Season 1
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Episode 19
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47:44
CMTA's Groovin' Jonah Berger shares the Magic of Camp Footprint and much more
An old soul with a big heart, Jonah Berger brings wisdom and youthful energy to every moment of every day. In this episode of CMT 4 Me, Jonah gets personal about his upbringing, family life, the Pickle Witch (yes, the Pickle Witch!), the CMTA's...
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Season 1
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Episode 18
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48:52
80s are the New 40s! CMTA Leaders Beverly and Frank Wurzel are Unstoppable
The CMTA has evolved and grown exponentially over the past 20 years, and if you have not been around to witness the transformation, you need to listen to the voices of longtime CMTA volunteers and branch leaders Beverly and Frank Wurzel. <...
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Season 1
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Episode 17
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42:07
Support. Love. Family. with Julia and Herb Beron
Julia and Herb Beron share a moving story of courage, resilience, and autonomy. Julia's never known life without CMT. Having had falls, foot and knee surgeries, hearing loss, and a diagnosis of Type 1 diabetes, Julia, with her fami...
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Season 1
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Episode 16
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1:00:09
Kicking CMT to the Curb - Your hosts, Chris and LizO: Dedicated to Riley Ashe
Comin’ at you! What do you get when you mix chaotic creativity with organized comedy? You get the #1 CMT Podcast available today: CMT 4 Me. Despite being polar opposites, this brother-sister team brings it all together in an exciting and inform...
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Season 1
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Episode 15
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47:47
Looking for a Good Physical Therapist (PT)? Tips for CMTers by a PT with CMT
Looking for a good Physical Therapist (PT)? Tips for CMTers by a PT with CMT: Kelly Chilson Dsc, DPT, COMT*Kelly addresses questions from the CMTA Facebook Discussion Group. *As an insider, Kelly gives advice on recovering we...
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Season 1
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Episode 14
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40:19
Actress Liane Schirmer Advocates for Inclusion in Hollywood
Direct, refreshing, and vibrant, Liane Schirmer talks about her late-set CMT diagnosis with humor and acceptance. As an actress in a world where roles are quite scarce for people with physical impairments, her career was on the line, and her fu...
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Season 1
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Episode 13
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48:35
CMT Will Not Get the Best of Me with Tom duPont
Tom duPont is a successful entrepreneur, community leader and family man living with CMT. Early in his diagnosis, he decided to meet CMT head-on by trying many different therapies, embracing those which slowed down the progression of his CMT sy...
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Season 1
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Episode 12
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42:04
