An old soul with a big heart, Jonah Berger brings wisdom and youthful energy to every moment of every day. In this episode of CMT 4 Me, Jonah gets personal about his upbringing, family life, the Pickle Witch (yes, the Pickle Witch!), the CMTA's future leaders, and Camp Footprint – camp for kids with CMT.
Explaining the success of Camp Footprint, Jonah points out, "This one-week sleepaway camp for kids with CMT is truly unique. Every camper fits in, feels free to let their guard down, and is given space to be vulnerable, real, and relaxed without the fear of being judged or perceived as different. There is no doubt in my mind – Camp changes lives."
Jonah's spirit and uplifting energy are not only contagious but also motivating. His talent for storytelling and insightful personality will inspire you to move mountains.
Bio: Jonah has CMT 1X and joined the CMTA staff full-time in early 2020 as the National Youth Programs Manager and is thrilled to be serving the CMTA community by working to celebrate and engage the youth. Jonah has written two books: He Walks like a Cowboy: One Man's Journey Through Life With a Disability and The Strangest of Places, both available on Amazon for purchase. Jonah also has a website where you can find his He Walk Like a Cowboy podcast as well as his blog:
HeWalksLikeACowboy.com
CMT 4 Me is an emotional, heartfelt, and humorous podcast for the 3+ million people who have CMT (Charcot-Marie-Tooth disease), their friends, family, and the general public. CMT 4 Me provides a platform for people with CMT to have a voice, describe challenges, find ways to overcome those challenges, and share successes. Another goal is to spread CMT awareness and unite as a community. We will also cover research updates, fundraising, unique stories, interviews with the CMTA community, including board members, branch leaders, and CMTA team members. Have a story you’d like to share? Write to info@cmtausa.org. You may be our next guest on the new CMT 4 ME podcast! For more information on the CMTA, please visit our website: cmtausa.org
For more information about CMT and to support the CMTA, please visit www.cmtausa.org